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International Collaborators

Picture of Gary Bedell

Dr. Gary Bedell

Email

(617) 627-2854

Dr. Bedell is Associate Professor, Tufts University, Department of
Occupational Therapy, Medford, MA, USA. His research examines participation of children and youth with disabilities and physical and environmental factors that affect their participation.  A key facet of this research is discovery of strategies that families already use or can use to promote their child's participation in real-life contexts.  Dr. Bedell also is primary author of the Child and Adolescent Scale of Participation (CASP) and Child and Adolescent Scale of Environment (CASE) and co-author of the more recent Participation and Environment Measure for Children and Youth (PEM-CY). The ultimate aim of his body of work is to guide development of interventions, programs and policies to promote meaningful participation of children and youth with disabilities. 

Picture of Wendy Coster

Dr. Wendy Coster

Email

(617) 353-7518

Dr. Wendy Coster is Professor and Chair of the Department of Occupational Therapy at Boston University's College of Health and Rehabilitation Sciences (Sargent College). Dr. Coster is also affiliated with the Health and Disability Research Institute at the Boston University School of Public Health. She received her professional preparation in occupational therapy at Boston University and completed a PhD in Psychology at Harvard University. Her clinical practice focus has been on school and other community programs serving children and youth with emotional, behavioral, and cognitive disabilities.  Her primary research focus has been the development of assessments to guide service planning and evaluation for individuals with disabilities and to support outcomes research.  Currently she is Director of the Patient/Clinician Reported Outcomes (PRO) Core of the Boston Rehabilitation Outcomes Measurement Center. Among the instruments she has helped to develop are the Pediatric Evaluation of Disability Inventory (PEDI) and its newly-revised and expanded version, the PEDI-CAT; the School Function Assessment (SFA); Late-Life Function and Disability Inventory; and the Activity Measures for Post-Acute Care (AM-PAC).  Dr. Coster's most recent project, conducted in collaboration with investigators from CanChild, was the development of the Participation and Environment Measure for Children and Youth (PEM-CY), an instrument for children with and without disabilities suitable for use in population surveys.

Picture of Adrienne Harvey

Dr. Adrienne Harvey

Email

 

Dr. Adrienne Harvey is a senior research physiotherapist in the department of Developmental Medicine, Royal Children's Hospital, Melbourne and clinical research coordinator for the Victorian Paediatric Rehabilitation Service, Murdoch Childrens Research Institute, Australia. Adrienne completed her PhD in 2008 on the Functional Mobility Scale for children with cerebral palsy and then spent two years as a post-doctoral fellow at CanChild. Dr. Harvey has a strong research interest and extensive clinical experience in children with cerebral palsy, particularly outcome measurement and the effect of interventions.

Picture of Christine Imms

Dr. Christine Imms

Email

Christine Imms is the Professor of Occupational Therapy and Head of the School of Allied and Public Health at the Australian Catholic University, and Honorary Research Affiliate at The Royal Children's Hospital in Melbourne.  Christine's research, and her collaborations with CanChild, have focused on investigating the participation of disabled children and youth.  Her research has predominantly been in the field of paediatric cerebral palsy and includes development and investigation of outcome measures to ensure their validity and reliability for use in research and practice, and investigation of the effectiveness of specific occupational therapy interventions alone or in combination with allied interventions.

Picture of Marian Jongmans

Dr. Marian Jongmans

Email

+31 30 2534236

Marian Jongmans, PhD, combines her work as a Professor of Pedagogy at the Faculty of Social and Behavioral Sciences at Utrecht University with a clinical post as a Health psychologist at the Department of Neonatology of the Wilhelmina Children's hospital in Utrecht, the Netherlands. Following her first degree in Human Movement Sciences she initially focussed her research interest on motor development of young children with physical disabilities, in particular children with Developmental Coordination Disorder. Modelled on CanChild, Marian was co-founder of NetChild (together with Jan Willem Gorter and currently in close collaboration with Marjolijn Ketelaar), a University Network for Childhood Disability Research in the Netherlands launched in 2003 to join research efforts of those working in rehabilitation medicine and special education in Utrecht. Her current research focuses on developmental trajectories of young children with (or at risk of) a physical and/ or cognitive disability or chronic illness with special attention to how the interaction between child characteristics and parenting practices influence these developmental pathways.

Picture of Marjolijn Ketelaar

Dr. Marjolijn Ketelaar

Email

+31 30 2561480

Marjolijn Ketelaar, PhD is an Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and Rehabilitation Center De Hoogstraat, and the supervisor of a number of Phd-sudents and MSc-students.
She has a background as Human Movement Scientist. She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths with cerebral palsy from 0 to 24 years old. She is a partner of NetChild, and a member of the board of the Dutch Academy of Childhood Disability Research (Dutch-ACD).
Her research interests include family centered services and functional therapy approaches for children with disabilities, and include barriers and facilitators in the performance of activities and participation of children with disabilities, with a focus on cerebral palsy. She has great interest in recent developments in interventions using principles from game-design and a great interest in knowledge translation, how research findings can be used in clinical practice.

Picture of Niina Kolehmainen

Dr. Niina Kolehmainen

Email

+44 (0)1224 438153

Niina is a clinician researcher in the Health Services Research Unit, University of Aberdeen, UK. She has a strong interest in empowering children with disabilities and their families to participate in life and society. Niina has two programmes of work, one related to Participation in Physical Play in children with motor impairments and another related to improving the delivery of children's therapy services (the 'Good Goals' work). Niina has a long-standing interest in methods related to the development, evaluation and implementation of complex interventions. She collaborates with a range of academic, healthcare provider and healthcare user partners in the UK, Europe and internationally.

Picture of Lena Krumlinde-Sundholm

Dr. Lena Krumlinde-Sundholm

Email

Lena Krumlinde-Sundholm, is an Associate Professor at the Karolinska Institutet, Department of Woman's and Children's Health, Neuropediatric unit, Stockholm Sweden.  Lena is initially trained as an Occupational Therapist and has a clinical as well as research interest in hand function, functional performance and participation in everyday tasks in children and adolescents with disabilities. Lena completed her PhD in 2002 and spent a post-doctoral period at CanChild in 2004.  Lena has a special interest in outcome measures and is the primary author of the Assisting Hand Assessment (AHA), is one of the developers of the Manual Ability Classification System (MACS) and the Children's Hand-use Questionnaire (CHEQ). She has also been involved in cultural validation of several outcome measures, recently with two CanChild instruments; the PEGS and the CAPE/PAC. She is engaged in the Follow-up Programme and National Quality Register for persons with cerebral palsy, CPUP. Current research projects involve further instrument development and evaluation of interventions for children with disabilities, from infancy to adulthood.

Picture of Livia Magalhaes

Dr. Livia C. Magalhâes

Email

Livia C. Magalhâes, PhD, OT. is a  full professor of occupational therapy at the Universidade Federal de Minas Gerais (UFMG), Brazil. She is involved both with the undergraduate Occupational Therapy program and the Graduate Program in Rehabilitation Sciences.  Her research interests are in motor coordination disorders, specially developmental coordination disorder,  and instrument development. As the coordinator of a Pediatric OT clinic and a follow up program for preterm neonates, she has great interest in assessment tools for the identification of motor skill problems as well motor intervention strategies that could be applied to larger groups of children. Currently her main research project is the development of a standardized motor development assessment tool to identify coordination problems among Brazilian children ages 4 to 8 years old.

Picture of Chris Morris

Dr. Chris Morris

Email

+44 (0) 1392 262980

Chris is a Senior Research Fellow in Child Health at the University of Exeter, UK. He leads PenCRU: the Peninsula Cerebra Research Unit, which carries out a broad programme of applied health services research evaluating ways to improve the health and wellbeing of disabled children and their families. Chris initially trained and worked as an orthotist, and has been awarded Masters and Doctoral degrees by the University of Oxford. His research interests include the involvement of families in childhood disability research, methodological and measurement issues, qualitative research with children, and the appraisal and use of patient reported outcome measures. In 2003 and 2006 he spent semesters at CanChild as a visiting scholar working with Peter Rosenbaum and colleagues whilst studying in the Health Research Methodology programme.

Picture of Eva Nordmark

Dr. Eva Nordmark

Email

+46 46 222 89 59

Associate Professor Eva Nordmark, is a specialist in Pediatric Physiotherapy and is working as a Senior lecturer at the Department of Health Sciences and Faculty of Medicine's Centre for Teaching and Learning, MedCUL, Lund University, Sweden. She is a Research Director at the Research Platform for Disability studies in Habilitation, Region Skåne. Her research interests are in; measurements, evidence based practice, higher education, health promotion, epidemiology, total population and longitudinal studies. As one of the initiators she supports the follow-up programme and National Quality Register for persons with cerebral palsy, CPUP.

Picture of Iona Novak

Dr. Iona Novak

Email

+61 2 409078917

Dr. Iona Novak has a background in occupational therapy with research expertise in conducting clinical trials and research registries. Iona is an Associate Professor and Head of Research at the Cerebral Palsy Alliance, School of Medicine, University of Notre Dame Australia. Iona oversees the research activities of Institute and provides leadership to the Australian Cerebral Palsy Register. Her research interests are in evidence based practice; intervention efficacy; knowledge translation; home programs; botulinum toxin and population studies leading to the prevention of cerebral palsy.

Picture of Olaf Verschuren

Dr. Olaf Verschuren

Email

Olaf Verschuren, PT, PhD is an Assistant Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and Rehabilitation Center De Hoogstraat, and the supervisor of a number of PhD-students and MSc-students.
He focuses his research on pediatric rehabilitation, specifically on development of functional activities of children with cerebral palsy. Most of his research focuses on the development of fitness measures for aerobic and anaerobic capacity and an exercise fitness program for children and adolescents children with CP who are able to walk independently and who self-propel a wheelchair. He has experience in implementing these fitness measures and exercise program in 18 rehabilitation centers/schools for special education in The Netherlands, Canada and Australia. Other research interests are: explore facilitators and barriers to participation in physical activity and sport, evidence based practice, health promotion and developments in interventions using principles from game-design.

Olaf has also been involved in the LEARN2MOVE 7-12 study and the HALYNeD study (Healthy Active Living for Youth with Neuromotor Disability).