MyTransition App

Most childhood health care providers talk to children and adolescents about taking on more responsibility for their own health as they age, yet many providers report having neither the tools nor appropriate resources to foster smooth transitions for patients and their families to the adult system.

A new app has been developed to help make the transition easier. The MyTransition app is designed to prepare patients between the ages of 12 and 18 to begin taking charge of their health care as they approach adulthood.

Key Features

TRANSITION-Q: a quiz that figures out ways to make the transition to adult care as smooth as possible.
MyHealth 3-Sentence Summary: a way to summarize health information to help you speak with doctors, nurses, or therapists.
MyHealth Care Team: a place to enter contact information for your health care providers.
Goals: a section that allows you to select items from the TRANSITION-Q to set as goals. It also provides links with tips on how to improve in these areas.

Illustration of a blue and orange calendar with several dates marked by gray and red squares, and the bottom right corner slightly folded.

Calendar: assists in keeping track of appointments and prescriptions

Icon of a light bulb connected to three computer monitors, representing the concept of shared ideas or innovation in technology or networking.

Tips: provides ideas to improve transition readiness linked to each of the 14 TRANSITION-Q items

Icon showing a candlestick chart with four bars of varying heights and colors, representing financial or stock market data trends.

TRANSITION-Q history: shows whether you have improved overall on the TRANSITION-Q

The importance of tracking language development in children with severe cerebral palsy with reliable and valid methods, Letter to the editor, published in Developmental Medicine and Child Neurology, 2019

Jael Bootsma, Johanna Geytenbeek and Jan Willem Gorter wrote a letter to the editor of Developmental Medicine and Child Neurology to stress the importance of reliable assessment of cognitive abilities such as language comprehension in children with severe impairments. Read the letter here.

Poster presented at the European Academy of Childhood Disability (EACD), Paris, France in May 2019.

A research poster about adapting a language assessment tool for children with severe motor impairments, comparing Norwegian, German, and English versions.

The implementation of a tailored language assessment for children with (severe) motor impairments.

Jael N. Bootsma, Kristine Stadskleiv, Sara Fiske, Kim J. Oostrom, Jan Willem Gorter, Olaf Kraus de Camargo, Johanna J. Geytenbeek.

Download here.

The MyTransition app includes tools to describe one’s health condition, raise important health needs in new situations, and measure skills related to managing one’s own health including the TRANSITION-Q. The TRANSITION-Q is a 14-item transition readiness/self-management ability scale. This short, clinically meaningful and psychometrically sound scale can be used in research and in paediatric and adolescent clinics to help evaluate readiness for transition.

The app also allows patients to complete a health passport for learning and relaying information about their medical history and treatment plans.

Download the App

The MyTransition app is available to download for free on iPhone and Android devices and we are currently studying how the app can empower youth and young adults with disabilities.