Publications and Presentations
In 2020, we made three short videos from the material that wasn’t used in the primary video. Hunter, Mussa, Marshall, and their families reflect on what everyday life is like when you communicate non-verbally.
- What social stigma do they face?
- Who are they besides their disabilities?
- How do they see technology improving their lives?
In 2019, we created an award-winning video that shows how technology opens doors for individuals who communicate non-verbally. It also highlights the development of the English language C-BiLLT!
Our friends in Norway published a paper about the psychometric properties of the Norwegian C-BiLLT. Importantly, they also show that access method doesn’t impact an individual’s test performance.
Publications:
2025 -
Coan-Brill, J., Friesen, J., Kay, J., Costigan, A., Chau, T., Geytenbeek, J., Stadskleiv, K., Batorowicz, B., Hopmans, S. Grahovac, D., Agnew, B. Cunningham, B. J. (2025). “My child is completely underestimated:” Canadian caregiver perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy. Disability & Rehabilitation. Published online Feb 28 2025.
Coan-Brill, J., Teachman, G., Costigan, A., & Cunningham, B. J. (2025). Exploring Assessment Practices for Children who have Limited Speech and Motor Function and Require Augmentative and Alternative Communication: A Scoping Review. Disability & Rehabilitation Assistive Technology. Published online Feb 1, 2025.
2023 –
- Coan-Brill et al. – Canadian survey study profiling AAC access and needs for children with CP.
2021 –
- Bootsma et al., - European survey study;
- Bootsma et al., European interview study.
2020 –
- Bootsma et al. – Canadian validation study
CIHR-funded presentations:
- 2024 – Speech-Language & Audiology Canada conference (Vancouver BC), Child Health Symposium (London, ON)
- 2023 – Empowered Kids Ontario conference (Toronto, ON), Child Health Symposium (London, ON)
- 2022 - American Speech-Language Hearing Association Convention, New Orleans (New Orleans, LA)
Poster presented at the Kids Brain Health Network Conference (KBHN), Virtual Conference, 2020
Transitioning to online research study visits for the validation of an accessible language assessment test - S. Elmansy, J. Bootsma, D. McCauley, A. Fan, S. Hopmans, J. Geytenbeek, O. Kraus de Camargo, J.W. Gorter.
The importance of tracking language development in children with severe cerebral palsy with reliable and valid methods, Letter to the editor, published in Developmental Medicine and Child Neurology, 2019
Jael Bootsma, Johanna Geytenbeek and Jan Willem Gorter wrote a letter to the editor of Developmental Medicine and Child Neurology to stress the importance of reliable assessment of cognitive abilities such as language comprehension in children with severe impairments.
Poster presented at the European Academy of Childhood Disability (EACD), Paris, France in May 2019.
The implementation of a tailored language assessment for children with (severe) motor impairments.
Jael N. Bootsma, Kristine Stadskleiv, Sara Fiske, Kim J. Oostrom, Jan Willem Gorter, Olaf Kraus de Camargo, Johanna J. Geytenbeek.
Poster presented at the McMaster Pediatrics Child Health Research Day, Hamilton, Ontario, Canada 2019
Jael .N. Bootsma, Olaf Kraus de Camargo, Jan Willem Gorter, Johanna J. Geytenbeek, Kim J. Oostrom, Dayle McCauley, Sarah N. Hopmans.
CP-NET Science and Family Day, Hamilton, Ontario, Canada, October 2018
The C-BiLLT was presented by Jael Bootsma (PhD candidate) and Sarah Hopmans (RC) as an exhibit at the Annual CP-NET Science and Family Day.
