Family Research Rounds Videos

 

Building Research Communities Through Social Media: Developing Trust While Building Stakeholder Capacity

Approaches to social media networking in research rarely consider the nuanced and meaningful nature of human connection. This can make for a daunting task when considering how to connect with people with lived experience. This is an informal conversation about best practices and approaches to engage stakeholders in research studies using social media.

 

Post-traumatic stress in parents of children with neurodevelopmental disorders

In this session, Donna Thomson and Patrick McGrath talked about the Life Beyond Trauma Program, a research project dedicated to developing an online intervention for parents who have experienced trauma in the care of their neurodiverse children.

 

Youth Telling Their Stories in Research

In this session, Sam Noyek shared the self-expressed stories of non-speaking youth. Sam is a Ph.D. Candidate at Queen's University in Rehabilitation Science. Her research explores patient-reported outcome measures for medically complex children.