The Collaborative Process for Participation Goals
The Collaborative Process for Participation Goals was developed by Robert Palisano and Lisa Chiarello to provide a systematic but flexible process to guide families and therapists through the many considerations necessary to develop action plan.
FOCUS Webinars
The FOCUS (Focus on the Outcomes of Communication Under Six) is a measurement tool designed to evaluate participation-based outcomes in preschoolers with speech and language impairments. The following four webinar modules have been created in collaboration with the Ontario Ministry of Children, Community and Social Services’ Preschool Speech and Language (PSL) Program. The modules describe the FOCUS, and explain how it can be effectively used in clinical practice and program-level evaluations.
FOCUS
Focus on the Outcomes of Communication Under Six (FOCUS © ) is a clinical tool designed to evaluate change in communicative-participation in preschool children. ‘Communicative participation’ is the child’s communication and interaction in “real world” situations at home, school, or in the community
Self-Care and Ease of Caregiving – Move & Play
This report highlights the information we gathered in the Move & Play study about children’s participation in self-care activities (such as eating, dressing, and bathing), and ease of caregiving for parents.
Move & Play Glossary
ActivityActivity is defined by the World Health Organization as the “execution of a task or action by an individual”. Examples of activities are eating, talking, and walking. Within this classification system, the essence is being able to do these activities,…
Participation and Environment Measure for Children and Youth (PEM-CY)
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17.
I Want to Participate In…
The “I Want to Participate In…” series of Tip Sheets provide examples of a wide range of leisure activities and are designed for use by children and young adults.
Participation 101: Tip Sheets
These Tip Sheets apply to children and youth of all abilities and were designed with input from parents, occupational therapists and representatives from community organizations to cover a variety of participation topics.
Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY)
This In Brief focuses on feedback from parents regarding the Participation and Environment Measure for Children and Youth (PEM-CY).
An Evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY)
This current In Brief includes more details about what we did to evaluate whether the PEM-CY provides consistent information about participation and actually measures what we want it to measure.
How Parents View Their Child’s Participation and Environment: Creating a Foundation for the PEM-CY
This current In Brief includes more details about what we learned from parents about their child’s participation and the impact of the environment on participation.
Child and youth participation in leisure activities: Does the environment make a difference?
n this Keeping Current, we explore the impact of the environment on the participation of children and youth who are living with a disability.
Assistance to Participate Scale (APS)
The APS is a brief, psychometrically sound instrument that measures the assistance that a school-aged child with a disability requires to participate in play and leisure activities at home or in the community, from the primary caregiver’s perspective.
The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth.
The Child and Adolescent Factors Inventory (CAFI)
The Child and Adolescent Factors Inventory (CAFI) is an inventory of problems in physical, cognitive and psychosocial functioning and other symptoms encountered by children with acquired brain injuries as well as other childhood disabilities.
The Child and Adolescent Scale of Environment (CASE)
The Child and Adolescent Scale of Environment (CASE) measures the perceived impact of problems experienced with physical, social and attitudinal environment features of the child’s home, school and community.
The Child and Adolescent Scale of Participation (CASP)
The Child and Adolescent Scale of Participation (CASP) measures the extent to which children participate in home, school, and community activities as reported by family caregivers.
Young Children’s Participation and Environment Measure (YCPEM)
The YC-PEM is designed to help parents, service providers and researchers better understand the participation of young children with and without disabilities ages 0 to 5 years.
Participation and Environment Project
The Participation and Environment Project is a collaboration between researchers in the United States and Canada.
The International Classification of Functioning, Disability, and Health (ICF): A Global Model to Guide Clinical Thinking and Practice in Childhood Disability
The International Classification of Functioning, Disability and Health (ICF) (WHO, 2001) is a classification system developed by the World Health Organization that focuses on the ‘components of health’.
The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications
Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.
Family Life – Move & Play Study
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
Health Conditions of Children With Cerebral Palsy (CP): Move & Play Study
This report focuses on what parents told us about the health conditions their children have, and how these conditions affected their daily lives. When we say “health”, we mean all the different functions of the whole body.
Parent to Parent
Helpful tip sheets written by parents who have children with Cerebral Palsy for parents.
Do You Know A Child Who Is Clumsy? A flyer for coaches and sports instructors
Do you know a child who is motivated to participate in sports activities at first, but they experience significant frustration when they just can’t seem to “get the hang of it”?
Children with Coordination Difficulties: A Flyer for Physical Educators
Some children have a great deal of difficulty learning to coordinate their movements and may appear awkward or clumsy. These children often struggle with participation in physical education class as well as in other subjects that involve handling objects, such as art, music or drama classes.
Encouraging Participation In Physical Activities For Children With Developmental Coordination Disorder
Parents of children with DCD are often confused and worried about their child’s lack of interest in physical activity. Parents, teachers and coaches may mistakenly label these children as lazy and unmotivated.
Conceptual Model of the Move and PLAY study
A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.
What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.
In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
Developmental trajectories of youth with disabilities, ages 12 to 25 years
This project was initiated and funded by the Ministry for Child and Youth Services (MCYS) in Ontario. The results of our synthesis have been used for the ministry’s development of a Youth Policy Framework, named stepping stones.
The International Classification of Functioning, Disability, and Health (ICF): There is Always More Than a Single Story*
The ICF helps clinicians and families think about a broader and fuller picture of both the specific health information and the life situation of a patient.
Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities
For children and youth, involvement in life situations includes participation in recreational and leisure activities as well as school and work activities.
PARTICIPATE STUDY: The Participation of Children with Disabilities
The PARTICIPATE study has been designed to examine the participation of children with physical disabilities in formal and informal everyday activities.
Determinants of Life Quality in Children with Cerebral Palsy
This two-year study described quality of life and level of participation of children with cerebral palsy (CP).
Additional Measures
Assistance to Participate Scale (APS), Child’s Challenging Behavior Scale (CCBS), Canadian Occupational Performance Measure (COPM), Daily Activities of Infants Scale (DAIS), Health Promoting Activities Scale (HPAS), Spinal Alignment and Range of Motion Measure (SAROMM).
Measures of Children’s Participation and Enjoyment: CAPE & PAC
The Children’s Assessment of Participation and Enjoyment (CAPE) and the Preferences for Activities of Children (PAC) are two companion measures of children’s participation.
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Development and Testing of a Resource Manual for Parents of Young Adults Who Receive Individualized Funding for Support
The goal of this project is to develop a Resource Manual that can be broadly circulated to families who receive individualized funding.