Move & Play
Description
Understanding Determinants of Motor Abilities, Self-Care, and Play of Young Children with Cerebral Palsy (Move & PLAY Study) 2006-2009
Summary
The purpose of this study was to follow a large number of children over a period of one year to gain an understanding of factors associated with motor function, self-care, participation and play of young children with cerebral palsy (CP). We have recruited 430 children in selected sites in both Canada and the United States, and maintained 90% of the sample over the year. We believe that the results of our study provide very useful information to improve the effectiveness and efficiency of rehabilitation services for preschool children with CP. Significant factors that are amenable to change are targets of intervention. Factors that cannot change assist with goal setting within children's likely potentials.
Executive Summary
Funders
This project is funded through two sources:
The Canadian Institutes of Health Research, MOP - 81107 (2006-2009)
U.S. Department of Education, National Institute of Disability and Rehabilitation Research, H133G060254 (2006-2009)
Research Team
Investigators, collaborators, consultants and staff
Doreen Bartlett, PT, PhD, University of Western Ontario
Lisa Chiarello, PT, PhD, PCS, Drexel University
Robert Palisano, PT, PhD, Drexel University
Peter Rosenbaum, MD,FRCP(C), McMaster University, CanChild Centre for Childhood Disability Research
Sally Westcott McCoy, PT, PhD, University of Washington
Lynn Jeffries, PT, PhD, PCS, Langston University
Beth Tieman, PT, PhD,
Alyssa LaForme Fiss, PT, PhD, PCS, Assistant Professor, Department of Physical Therapy, Mercer University, Regional Coordinator, Atlanta region
Barbara Stoskopf, RN, MHSc, McMaster University, CanChild Centre for Childhood Disability Research, Project Coordinator
Audrey Wood, PT, MS, Drexel University, Regional Coordinator, Greater Philadelphia region
Allison Yocum, PT, DSc, PCS, University of Washington, Regional Coordinator, Greater Seattle-Tacoma region
Barbara Sieck Taylor, USA, Parent consultant
Tina Hjorngaard, Canada, Parent consultant
Dissemination Materials
Visualiser le matériel de diffusion en français ici
Twelve research summaries have been prepared from the results of the Move & PLAY Study, conducted by Doreen Bartlett, Lisa Chiarello, Robert Palisano, Peter Rosenbaum, Sally Westcott McCoy, Lynn Jeffries, Alyssa LaForme Fiss, Barbara Stoskopf, Audrey Wood, Allison Yocum, Barbara Sieck Taylor and Tina Hjorngaard. With assistance of this research study team, including the dissemination facilitator (Barbara Stoskopf), parent consultants (Barbara Sieck Taylor and Tina Hjorngaard), study assessors, an independent group of parents of young children with CP, as well as therapists who provide services to such children but were not a part of the study, these 12 summaries have been refined. Each summary is meant to stand alone; however, when applicable, we provide information on the relationship between summaries and recommend if a particular summary should be read first. As an example, the summary on the conceptual model for this study provides an overview of the purpose and framework for the entire study, so the team recommends that it should be read first.
Furthermore, each summary has different parts to it, each of which may appeal differently to each reader. For example, the "thought boxes" at the end of each summary add a "so what?" component for parents and therapists who wish to fast forward to find out the more practical components of the summary, and see a "take home" message. For those readers unsure of certain terms used in the summaries, there are links to a glossary which defines some uncommon words, so readers can progress through these summaries more easily. For those individuals who would like to learn a bit more about the specific measures or psychometric properties of the tools used in the various research summaries, there are links that will take them to such information. Each summary also has a list of the references used in creating the summary, a link to the full research article from which the summary came (when available), and links to places where you can get more information on the topic presented (including specific contact information for some members of the research team).
Summaries will be posted as associated full research manuscripts are accepted.
These summaries were created by parents and therapists, for parents and therapists. If you have any further questions regarding these summaries, or have feedback for our team, please contact the principal investigators, Doreen Bartlett (djbartle@uwo.ca) and / or Lisa Chiarello (lc38@drexel.edu).
Research summaries currently available:
Conceptual Model of the Move and PLAY Study
Health Conditions of Children with Cerebral Palsy (CP)
Gross Motor Function Measure (GMFM), New Shortened Versions
These measures developed in the Move & PLAY Study are currently available:
Early Clinical Assessment of Balance
Gross Motor Function Measure (GMFM-66-B&C)
Health Conditions Questionnaire
Spinal Alignment and Range of Motion Measure
Articles
Bartlett, D., Chiarello, L., Westcott McCoy, S., Palisano, R., Rosenbaum, P., Jeffries, L., LaForme Fiss, A., & Stoskopf, B. (2010).
The Move & PLAY Study: An example of comprehensive rehabilitation outcomes research.
Physical Therapy, 90(11), first published on August 19, 2010.
- Reprinted with permission of the American Physical Therapy Association (APTA). This material is copyrighted, and any further reproduction or distribution requires written permission from APTA.
Brunton, L.K., & Bartlett, D.J. (2011). Validity and reliability of two abbreviated versions of the Gross Motor Function Measure. Physical Therapy, 91, 577-588.
Chiarello, L. Palisano, R. Bartlett, D., Westcott McCoy, S. (2011). A multivariate model of determinants of change in gross motor abilities and engagement in self care and play of young children with cerebral palsy. Physical & Occupational Therapy in Pediatrics, 31(2), 150-168.
LaForme Fiss, A., Westcott McCoy, S., Bartlett, D., Chiarello, L., Palisano, R., Stoskopf, B., Jeffries, L., Yocum, A., & Wood, A. (2010). Sharing of lessons learned from multi-site research. Pediatric Physical Therapy, 22(4), 408-416.
Jewell, A., Stokes, A., & Bartlett, D. (2011). Correspondence of classification between parents of children with cerebral palsy aged 2 to 6 years and therapists using the Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 53(4), 334-337.
Wong, C, Bartlett DJ, Chiarello LA, Chang HJ, & Stoskopf B. (2011). Comparison of the prevalence and impact of health problems of pre-school children with and without cerebral palsy. Child: Care, Health and Development, Mar 28. doi: 10.1111/j.1365-2214.2011.01233.x. [Epub ahead of print]
Presentations
Click here to view presentations related to this study.
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