5 current studies found

Co-Design

Co-Creating Services with Equity-Deserving Populations What is Co-Design? Over the last decade, codesign has emerged as a ubiquitous research and service/systems development approach ranging from technology development to health and social system change. Codesign, at a basic level, refers to…
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Congregate Living and COVID-19

Congregate Living and COVID-19 Why study the impact of COVID-19 within congregate livings settings?” Congregate living settings supporting individuals with neurodevelopmental intellectual and developmental disabilities experienced unprecedented challenges during the COVID-19 pandemic. To address these challenges, several studies focused on…
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READYorNot™ Brain-Based Disabilities Project

READYorNot™ Brain-Based Disabilities Project Youth with brain-based disabilities (BBD) require seamless transition from the pediatric to adult health care systems. This transition can be disruptive for youth and their families and have a negative impact on a patient’s health. In…
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MPOC 2.0 – Measure of Processes of Care

Home » Current Studies MPOC 2.0 What we learnedPublications MPOC 2.0 – Measure of Processes of Care Raising a child with a long-term disability poses numerous challenges that affect many aspects of parents’ lives. We know that parents’ experiences with the…
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BEST SIBS

Home » Current Studies BEST SIBS Current ProgressSibYAC MembersSibling ResourcesPublications and PresentationsBlogsSibYAC ActivitiesSiblings TEAKit BrothErs and Sisters involvement in health care TranSition for youth wIth Brain-based disabilitieS (BEST SIBS) Study As children with disabilities grow up and become adults, they…
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