This study responds to the need for a systematically well-designed research approach to developing evidence-based transition tools that are affordable, easily implemented in healthcare systems, and applicable to the majority of youth with chronic health conditions.
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16 current studies found
Parenting Matters!
The parenting matters project is a research study funded by the Canadian Institutes of Health Research (CIHR). The study seeks to develop a better understanding about what it means to parent a child with a neurodevelopmental disorder.
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MyStory
MyStory Description The MyStory Project will study the physical health (fatigue and pain), mental health (anxiety and depression), chronic stress, and overall well-being in Adolescents and Young Adults (AYA) with Cerebral Palsy (CP) between the ages of 13-30. Adolescents and…
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Let’s Talk About Sex
Let’s Talk About Sex The purpose of this pilot study is to translate the Dutch educational Board game “SeCZ TaLK” into English, validate its use across cultures, and evaluate how useful it is and how it is used by youth…
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Developmental Trajectories of Youth with Disabilities
Developmental Trajectories of Youth with Disabilities (age 12-25 years of age): A Knowledge Synthesis This report is the outcome of a knowledge synthesis project on developmental trajectories of youth with disabilities, ages 12 – 25 years (December 15, 2010 to…
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Autism Classification System of Functioning
Development of the Autism Classification System of Functioning: Social Communication Autism Spectrum Disorder (ASD) is a huge challenge in the field of childhood neurodevelopmental disability. The wide ‘spectrum’ of these conditions means that people’s functional capacities and limitations vary enormously. A challenge in…
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