In the past, therapeutic interventions have been focused on individual independence and skills or components needed to complete tasks such as dressing oneself. Rather than focusing on just on skills or components, recent research suggests that it is better to focus on the capacity of the individual to participate in activities that are important of them, and to learn how to direct someone else to support the individual two complete tasks/activities. The ability to direct care is only one component of capacity, other components include: having a social network and supports that can be relied upon; the ability to problem solve and provide solutions to solve problems; and learning how to be "interdependent: rather than "independent".
The individual is not the only focus of capacity. Families and communities also have capacity as well. The capacity of families includes important elements of the relationships, support networks, and for youth in transition to adulthood, it also includes learning to "let go" when appropriate.
Community capacity refers to the resources and supports in place for an individual with a disability to participate fully in that community. Within the context of transition to adulthood, community capacity refers to building supports for youth moving from pediatric to adult services, which can include changing attitudes towards inclusion and becoming more accessible for all persons with disabilities.
Capacity building is a new focus of research, building on what we have learned in the past decade. For more information on our most current research, please see the "Best Journey to Adult Life: Best Practice Guidelines".