Resources

71 resources found

Should the Gross Motor Function Classification System Be Used Outside of Cerebral Palsy?

The Gross Motor Function Classification System (GMFCS) is a classification tool used to describe levels of gross motor functioning of children with cerebral palsy (CP). Because of the tool’s accuracy in classifying children with CP, some researchers have attempted to use the GMFCS to describe functional mobility of people with other conditions. Here we explain why the GMFCS should not be used outside the domain of CP.
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Finding Community: Social Media for Families of Children with Disabilities

Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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Genomic Copy Number Variation in Cerebral Palsy

Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Growing up with CP: Mental health & well-being

CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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