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Marion Knutson

Associate Member (Family Partner)

Marion Knutson headshot

Biography

Marion Knutson is a parent-partner in research with organizations that focus on children with neurodisabilities, their siblings, and pediatric palliative care. She has been involved with Envisage since the early stages of their programs. She has partnered in research with McMaster University, the University of Manitoba, Sick Kids Hospital and the Canadian Pediatric Palliative Care Alliance.

She has a background in business, education and currently works for Patient Advisors Network (PAN) in addition to he work as a freelance writer. Marion is a parent to four children; her youngest has a rare, incurable, progressive disorder and multiple disabilities. Her home base is in rural Ontario.

She loves to bake, read, find deals, and travel all over the world - even with a medically complex disabled child in tow.

Area of Focus

Pediatric palliative care, Neurodisabilities, Siblings, Pediatric rare disease, Service navigation, Inclusive education