Sara Pot

Sara Pot is an educator, facilitator, and parent of four, including two fantastic teens who require constant care specific to their rare diagnosis. Influenced by her family's journey through both the hospital and paediatric rehabilitation systems, Sara is involved with training and developing patient & family engagement strategies in health research and health practice. Much of her work is with RareKids-CAN, Canada's newest paediatric rare disease clinical trials and treatment network and CanChild's Family Engagement in Research course. In addition to several volunteer advisor roles, Sara is a writer and presenter on the topic of faith, disability & belonging - and has a passion for tending the family's butterfly garden.

Related links: