Parenting Matters! The Biopsychosocial Context of Parenting Children with Neurodevelopmental Disorders in Canada

The parenting matters project is a research study funded by the Canadian Institutes of Health Research (CIHR). The study seeks to develop a better understanding about what it means to parent a child with a neurodevelopmental disorder (examples of neurodevelopmental disorders are: Spina Bifida, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorders, Autism Spectrum Disorder, Down syndrome, cognitive disabilities and global developmental delay) and the day to day experiences of these families.

As part of this project, we have undertaken a national review of the legislation, policies and programs that exist to support children and youth with a neurodevelopmental disorder and their families. Please use the map below to explore what is available by province or territory to provide families and service providers with a broader understanding of available services and how they can be accessed in their area.

 

Map of Canada Link to Information about Yukon Link to Information about British Columbia Link to Information about Alberta Link to Information about Northwest Territories Link to Information about Nunavut Link to Information about Saskatchewan Link to Information about Manitoba Link to Information about Ontario Link to Information about Quebec Link to Information about Newfoundland & Labrador Link to Information about New Brunswick Link to Information about Nova Scotia Link to Information about Prince Edward Island

Research Team

Principal Investigator: Peter Rosenbaum (Nominated)

Co-Principal Investigators: Lucyna M. Lach, & Dafna Kohen

Co-Investigators: Rachel Birnbaum, Jamie Brehaut, Delphine Collin-Vezina, Rochelle Garner, Michael McKenzie, Ted McNeill, Alison Niccols, David Nicholas & Michael Saini

Period: 2009-2013